Scleroderma And Raynaud's UK
18-20 Bride Lane, Blackfriars, London, EC4Y 8EE
LAST UPDATED 24 WEEKS AGO
Number of beds
0
Total employees
12
Registered Nurses
0
Other care staff
0
About Scleroderma And Raynaud's UK
Scleroderma and Raynaud's UK is a UK charity providing information on this rare autoimmune condition and we are recruiting for a healthcare specialist (including nurses) to join us on our mission. You can work from home, or in our London office in Blackfriars. SRUK supports sufferers through our helpline, support groups, events, webinars and conferences. We are pleased to announce we are looking to hire our first healthcare professional to join our team. Find out more about this nursing job, what scleroderma and Raynaud’s conditions are, what we do at SRUK to help sufferers, and why you might want to change your nursing career direction to join our small, passionate and dedicated team helping people lead better lives. Apply today!
Our nursing job in London at Scleroderma and Raynaud's
We are recruiting our first Health Care Specialist to join our small and dedicated team providing vital services.
You can work from home or in our office in Blackfriars, London.
This is a permanent, part-time role, working 3 days per week, 9am - 5pm. You will work with people affected by scleroderma and Raynaud’s to help them access the right support and answer any questions they may have when they most need it.
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With a background in rheumatology nursing, you will have exceptional people skills. You will demonstrate passion for helping and supporting those living with rare conditions, and have excellent knowledge in the best ways to navigate the healthcare system. You will desirably have experience in supporting those with scleroderma, but we are open to applications from those who are willing to expand their knowledge in this area.
Benefits
Benefits include: 6% pension contribution, 33 days annual leave (inclusive of bank holidays), long service sabbaticals, flexible working arrangements and more.
What you will be paid
The pay for our nursing job is £46,666 per year. This works out at £28,000 pro rated to 21 hours per week.
Why you should choose a career with Scleroderma and Raynaud's UK
Scleroderma and Raynaud’s UK is the only UK charity working to improve the lives of those living with and are affected by the conditions. SRUK works to improve awareness and understanding of these conditions, to support those affected, fund ground breaking research and ultimately, to find a cure. Our aim is to reach out to every single person who has a scleroderma or Raynaud's diagnosis, providing them with the information and support they need.
Improving the lives of people with scleroderma and Raynaud's is central to everything we do. We want everyone with the conditions to live as full and unlimited a life as possible, until we find a cure.
You will be joining a small team with purpose and passion.
What is Scleroderma and Raynaud’s?
Scleroderma is a rare, complex auto-immune condition, affecting roughly 19,000 people in the UK. Raynaud’s phenomenon is a common circulatory disorder affecting roughly 1 in 10 people in the UK. Raynaud’s is one of the most common symptoms associated with scleroderma.
Scleroderma
Scleroderma is a rare orphan disease of the immune system, blood vessels and connective tissue. 2.5 million people worldwide have scleroderma, with 19,000 people diagnosed in the UK.
Due to fibrosis process, collagen deposits form under the skin and on the small blood vessels.
The condition is complex and involvement of organs such as the heart, lungs and gastrointestinal system is common. In addition, quality of life is significantly affected for people with this condition due to the painful and often debilitating symptoms.
Scleroderma has been likened to ‘having your body turn to stone’.
More than half of patients diagnosed with diffuse systemic sclerosis (SSc) will die or develop significant heart lung or kidney problems within three years.
Scleroderma patients are more than four times more likely to die than average for their age and sex. (Nihtyanova et al)
Despite currently licensed treatments scleroderma associated pulmonary hypertension is associated with a 5 year survival of under 50%.
Patients with early diffuse cutaneous disease have very high levels of disability. (Information courtesy of sruk.co.uk)
Raynaud’s
The small blood vessels in hands and feet are extremely sensitive to changes in temperature.
This means people with Raynaud’s Phenomenon will experience colour changes in their hands, as well as numbness and pain.
Raynaud’s is very common in the UK, with 10 million people affected, however a small percentage of people with Raynaud’s Phenomenon could go on to develop scleroderma.
97% of people with scleroderma were first diagnosed with Raynaud’s Phenomenon.
What we do at SRUK
We fund research
We are driven to make real progress towards more effective treatments and a cure. We invest in innovative research projects at the forefront of the field.
We provide support
Being there for our community when they need us is paramount – we do this through our helpline, local support contacts, support groups and our online forum. We also run educational events and have an annual conference to bring people together.
We provide information
Our website and publications are accredited through the Patient Information Forum, we consult with professionals, specialists and our community to ensure that we are providing relevant, creditable and up-to-date information and that we are addressing any gaps in available information.
We drive change
We also make our voices heard with decision-makers and politicians, pushing scleroderma and Raynaud's to the top of the health and social care agenda. We work in partnership with other organisations to ensure that we are amplifying our message.
Our values at SRUK
Collaborative in the way we work
Trusted because we are open and honest about the way we work
Compassionate because we always put the person first
Driven to see real change
